KLS Support UK: Danielle Harris

In order to gain an understanding of what support is available to Kleine-Levin Syndrome patients, their families and their loved ones, I reached out to a UK-based charity KLS Support and spoke with trustee Danielle Harris, who' son also has the syndrome.

Danielle became a trustee of the charity not long ago after being invited to join by her fellow colleagues. The aims of the charity are too:

• provide support to persons affected by KLS in the UK and their families.

• raise awareness of KLS in the UK amongst the medical profession and the general public.

• support medical research with the aim of finding the cause, treatment and ultimately a cure for KLS.

• co-operate with other KLS groups around the world to further these aims.

I spoke with Danielle about the rarity of the condition and if she believed more could be done to help raise awareness. She also told me about support days the charity offers, such as inviting those who have the condition and family members to events.

You can listen to some of my interview with Danielle here: