Initial Research and Planning of Interviews

Months before I began this project officially, I began researching Kleine-Levin Syndrome online and came across a blog written by a mum who’s son had been diagnosed with KLS. The blog dates back to 2011, when the symptoms originally began and everything they had been through since, such as the endless doctors appointments, how many episodes he had had and how long they lasted, to problems at schools in terms of homework, exams and missing classes.

I decided to reach out to Helen, the author of the blog, in hope to arrange a potential interview with her to discuss the effects her son’s condition has had on their family. Much to my delight, Helen replied almost instantly, and said I could interview her son Jake, who lives with KLS, and her daughter Beck. Helen also put me in the direction of Dr Catherine Hill, one the UK’s leading sleep specialists, as well as providing me with endless links to help with my research. You can see my reply from Helen here:

I told Helen that once I had given my pitch, I would be in contact within the next few weeks to arrange interviews.